Record

StorageSiteUCL Institute of Education
LevelFile
Reference Number NSHD/7/6/15
TitleEthics: Genetic data
Date2006-2014
DescriptionPapers regarding ethical issues involved with the collection of genetic data as part of the MRC National Survey of Health and Development (NSHD), during the period 2007-2012. This period of data collection had the project title 'Life course pathways to ageing'.

This file includes:

- correspondence regarding data sharing and anonymisation of genetic data gathered in 2012;
- application forms for ethical approval;
- correspondence with the Central Manchester Research Ethics Committee;
- an NSHD 'study of genes' information booklet, along with consent forms for the Manchester study 2006-2007;
- Printouts of internal email discussions regarding data handling and ethics.
Extent1 folder
AccessStatusOpen
AccessConditionsAvailable subject to the usual conditions of access to Archives and Manuscripts material. All papers in this collection require the completion of a Data Protection Agreement form before access can be granted. Please note that no NSHD staff or contractors named in these documents should be contacted directly. Any enquiries regarding NSHD data collection should be sent to MRCLHA.SwiftInfo@ucl.ac.uk.
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